Update 12:54 pm, January 10, 2013. Facebook rescinded the ban of AntiVaccine Wall of Shame. Thank you Facebook. https://www.facebook.com/groups/AVWOS/ Allison Hagood's account has been unbanned.
Update 3:12 pm January 10, 2013. All of the administrators of AVWoS are still banned -- one for as long as 30 days.
Update 3:55 pm January 10, 2013: While the page has been restored, the bans for all admins (24 hours for Michelle Saxl, 3 days for Lance Penna , 3 days for Michael Simpson's account, 7 days for Allison Hagood, and THIRTY DAYS for Scott Ogle are still in effect.
Facebook still needs to fix that.
A new banning just took place. There’s a Facebook page called “The Antivaccine Wall of Shame” (AVWoS). It has been taken down. Allison Hagood (one of the co-authors of ‘Your Baby’s Best Shot) has had her personal account banned from Facebook for 7 days. Here the message that Allison received from Facebook, relative to AVWoS
Here is Allison’s reply to Facebook:
There is nothing hateful, threatening, or obscene about the group "Anti Vax Wall of Shame." The fact that you have removed this indicates that you have been receiving fraudulent reports from the anti-vaccine movement, who are on record as coordinating and planning massive campaigns of such fraudulent reports in an attempt to censor those of us who recognize established science in this area. Several stories have been written about these campaigns:
By removing this group, and giving the administrators of this group bans, you are actively participating in the censorship of science and rational thought, and pandering to the perpetrators of censorship and fraud.
It is legitimate for Facebook to prevent harassment, and without context, the Anti-Vaccine Wall of Shame does look as if it might border on harassment.
Dorit Reiss (who wrote the Times of Israel piece, “Abusing the Algorithm: Using Facebook Reporting to Censor Debate") suggests the following be publicly explained to Facebook as context:
To understand the need for the Anti-vax Wall of Shame, and why it is not harassment, you need to understand two features of the fight against anti-vaccine misinformation. The first is that anti-vaccine sites censor debate. So if they encourage people not to vaccinate their children against polio or tetanus - leaving those children at risk - based on misinformation, you cannot correct that misinformation on the page: they will ban and block you. The second feature is that anti-vaccine activists, lacking facts on their side, regularly engage in personal attacks.
There is documentation of personal attacks by antivaccine advocates on Facebook, in the form of screenshots and a closed Facebook page that collects said attacks. For example, the exchange below, which has both a personal attack on Allison Hagood and a suggestion that readers contact her employer to complain. (I personally collected this one and have a large library of such attacks.)
Dorit Reiss (who has also been attacked, sometimes with vile anti-Semitic slurs) goes on:
[Th]ose of us engaged in this debate regularly face personal abuse. (On Facebook and on websites outside of Facebook.) The Anti-Vax Wall of Shame (AVWoS) does two things in this context: it allows us to call out the behavior, both the misinformation and the abuse - to publicly criticize and point out the problems, alerting people to it. And it allows those engaged in this fight, facing constant abuse, to vent their frustrations and cry out. This enables them to keep fighting.
To prevent the critique from becoming harassment, AVWoS page rules require removal of names and pictures, except when discussing a public figure. This makes the critique not personal - and not harassment. Do individual commentators sometimes step over the line and into harassment? Possible. But that does not make the page a hate group or a focus of harassment. Its role does make it a target of anti-vaccine activists, unhappy with being criticized. But that is not a reason to remove it, and their unhappiness is not something Facebook should be a part of."
I am frustrated by Facebook's hair-trigger ban hammer, and how it can be sued to stifle approrpriate criticism and public discourse. I don't have any answers.
This putative list of 28 papers was originally published (to the best of my ability to ascertain) on Joe Mercola's site as a part of his interview with Andrew Wakefield in April, 2010. The list has returned to circulation recently, so it deserves another look.
Of the 28 papers, two (#18 and #22) are repeat citations, bringing the number down to 26. Wakefield's retracted Lancet paper was published on February 28, 1998. Any papers published prior to that date cannot be said to "support" or "replicate" his work. The list of 26 includes three papers (#5, #16, and #17) published well before the Lancet paper, so the list is down to 23.
Of the remaining 23 papers, #s 2, 3, 4, 18, and 19 have Wakefield as a co-author. So we are down to 18 papers.
Of those 18 papers, #9 was published by a journal Wakefield edited; #20 included Wakefield's co-authors on the retracted Lancet paper; and #27 is closely associated with Wakefield's Texas clinic, Thoughtful House None represent independent replication or support of Wakefield's research. So the list is down to 15 papers.
Remember what the retracted Lancet paper claimed,
"We have identified a chronic enterocolitis in children that may be related to neuropsychiatric dysfunction. In most cases, onset of symptoms was after measles, mumps, and rubella immunisation. Further investigations are needed to examine this syndrome and its possible relation to this vaccine."
Of the remaining 15 papers, #s 1, 7, 8, 10, 12, 13, 24,25, 26, and 28 discussed some aspect of gut disfunction in autistic individuals but did not mention measles virus or measles vaccines. These 10 papers do not, therefore, "replicate" or "support" the retracted Lancet paper or Walkfield's research. the list is down to 5 papers.
Of those 5 papers, #6 and 11 are by one researcher. #14 is a speculative paper in a dodgy journal on the author's belief that autism is an occult tetanus infection. #15 discusses a treatment modality. #23 discusses metabolic variations in autistic adults.
Paper #6 does mention autism and measles, but there is sound reason to believe that what the authors found was laboratory contamination, not measles virus.
In short, the list of 28 doesn't "support Dr. Wakefield's Research".
The list as cited
Discussion of the papers in depth
...a closer look at Singh's science revealed two critical flaws: children with autism didn't have nerve damage and, according to measles experts, the test that Singh had used to detect measles antibodies didn't detect them.
Note that the newest paper on this list is from 2009. Since then, there have been approximately 11,000 papers published on the subject of autism; you would think that whoever has drawn up this list could find one or two to add to the list.
This list has been rebutted by
Where the list has been cited uncritically recently:
On Thursday, September 12, 2013, somebody named Arjun Walia published a post, "22 studies that show that vaccines can cause autism" at an online conspiracy-theorist site called "Activist Post", or as they say, "Activist Post is an Independent News blog for Activists challenging the abuses of the establishment." The big-$Cama writer Ethan Huff pimped it October 1, 2013 at Natural News, writing:
But a thoroughly-researched report recently published by Arjun Walia over at Activist Post reveals that there are at least 22 published scientific studies that show a link between vaccines and autism
So, let's see how new and "thoroughly researched" Walia's 22 studies are:
A collaboration of United States specialty societies representing more than 500,000 physicians developed lists of Five Things Physicians and Patients Should Question, specific to each specialty, in recognition of the importance of physician and patient conversations to improve care and eliminate unnecessary tests and procedures.
The American College of Medical Toxicology and The American Academy of Clinical Toxicology developed this list of Five Things Physicians and Patients Should Question
(click to embiggen)
Innis, MD Autoimmunity and Non-Accidental Injury in Children. Clinical Medicine Research. Vol. 2, No. 3, 2013, pp. 40-44. doi: 10.11648/j.cmr.20130203.15
This recent paper is being cited as "proof" that vaccines can cause symptoms that might be mistaken for "shaken-baby syndrome".1 It isn't proof of anything, except for perhaps the author's cognitive decline due to age.
This is a very, very poor paper.
Michael Innis is an MD and retired hemotologist, who has asserted that some children diagnosed with shaken baby syndrome are really suffering from bleeding disorders, either caused by vaccination or by various vitamin deficiencies. Innis has served as an expert witness for the defence in several shaken-baby trials. He has his own page at Whale.to, where as late as 2010 he was supporting Andrew Wakefield.
Recently, a woman named Christina England has been exploiting the tragic death of "Baby A" (Baby Alaia) to advance the anti-vaccine agenda, with an article entitled Five Month-Old Baby Dies Just Days After 8 Vaccinations – Parents Are Charged With Her Murder. According to the South African paper, Alaia died October 17, 2012, after 7 days in the hospital. "Tests before her death had revealed several injuries consistent with child abuse." I believe Alaia was treated at the Life Flora Clinic. Note that Alaia was reported to have several long-bone fractures. " A non-ambulant child presenting with a femur or skull fracture should be regarded highly suspicious of [non-accidental injury]."
A person named Ethan A. Huff is a staff writer for the supplement-shilling site, "Natural News", owned by Mike Adams. Huff frequently promotes England's causes, and was the person who started touting Innis's recent paper.
This post prompted by the discussion at Respectful Insolence, Here we go again: The vile tactic of blaming shaken baby syndrome on vaccines.
1. "While there is no doubt that infants do suffer abusive injury at the hands of their carers and that impact can cause catastrophic intracranial damage, research has repeatedly undermined the hypothesis that shaking per se can cause this triad. The term non-accidental head injury has therefore been widely adopted. " --The "Shaken Baby" syndrome: pathology and mechanisms.
Some hours or days before June 9, 2013, Alex Spourdalakis, aged 14 and autistic, was drugged, then stabbed and slashed. He died of his injuries. On June 12, his mother and godmother--the only people responsible for his care-- were charged with his murder. Their names are Dorothy Spourdalakis and Jolanta Agata Skordzka.
On August 30, a CBS reporter, Sharyl Attkisson, published a reprehensible story about Alex's murder, appearing to excuse the actions of the accused, and using without question or comment videotapes from a very suspect source.
Between August 30 and September 3, nine or more bloggers wrote articles condemning Attkisson's reporting1. On September 1, a group, The Thinking Person's Guide to Autism2, launched a Change.org petition, CBS News: Take down the video Behind the Tragedy: Mother Murders Autistic Son
On the Autism Murder story: yes, the predictable coordinated astroturf campaign begins! (Watch for key words such as "lies," "crank," etc). Fortunately, I think most have come to recognize it. But for all those who have messaged me, do let CBS know you appreciated the story!
Back in March 2013, Age of Autism, Lisa Joyce Goes of The Thinking Moms' Revolution, Jeanna Reed of Autism is Medical, and Polly Tommey and Andrew Wakefield of the Autism Media Channel made much of an hospitalized autistic teen, Alex Spourdalakis, using his health woes to advance their own agendas.
Wakefield and Tommey shot videos of Alex, showing him in 4-point restraints and semi-nude with a diaper barely concealing his genitalia. These videos were posted to YouTube, presumably with the consent of Dorothy Spourdalakis. Autism Media Channel is seeking to develop an "autism reality show"; the videos made of Alex would presumably be part of the show.
After March 23, these people -- so concerned-- appeared to drop the Spourdalakis family. Oh, there was that tear-jerking video by Wakefield on May 23, but actual published support? Nada.
On June 9, Alex Spourdalakis was brutally murdered. His mother and godmothers -- his caretakers -- have been charged.
Sharyl Attkisson, a CBS reporter, has a history of reporting as if she is deep in the pockets of the anti-vaccine, autism-hating movement. On August 30, 2013, in a report entitled, Film provides glimpse into life of autistic teen killed by his mother, Attkisson became an apologist for accused killers Dorothy Spourdalakis and Jolanta Agata Skordzka, who had first drugged Alex Spourdalakis , and when he didn't die fast enough, stabbed him repeatedly and hacked his hand nearly off.
The report featured clips from a documentary-in-progress, produced by something called Autism Media Channel, which is Polly Tommey's and Andrew Wakefield's enterprise for spreading fear, uncertainty, and doubt about vaccines, and to denigrate autistics and spread fear of autism.
The purpose of the CBS report was to paint Spourdalakis and Skordzka as victims of "the system". Attkisson quotes uncritically Tommey's claim:
"Dorothy was like any other autism mother, desperate to get help for her child," Polly Tommey, who is producing Alex's story for the channel, told CBS News' Sharyl Attkisson.
"His death didn't need to be," Tommey, who is the mother of an autistic son herself, said. "It was because there wasn't anything in place for him."
No, Dorothy Spourdalakis isn't like other autism mothers. She refused appropriate services and medical care, demanded inappropriate medical care, and ultimately murdered her son after a week of planning the crime.
Notice what Tommey said. She is not placing the responsiblity for Alex's death on his mother and godmother, but on a "lack of services." How callous can you get? It isn't even factual.
Betz recalled how she told Dorothy Spourdalakis that, although she couldn't promise her state money, she would do whatever she could to help get the support the mother needed.
Spourdalakis said all she wanted was an attorney.
Betz found a lawyer and thought the boy's mother was doing better. Then she learned that Alex had been stabbed to death in his bed.
According to a local report, Alex's
Family members refused DCFS referrals to community-based services ranging from respite to psychological counseling, said Dave Clarkin, DCFS spokesman.
While he was alive, Alex Spourdalakis was used by anti-vaccine activists to promote their beliefs about vaccines and autism. Now he is again being used by the same individuals, with Sharyl Attkisson's collusion.
Text: ACTION ALERT!!!!! Watch this important story about the medical neglect of Alex Spourdalakis. Please call CBS viewer line at 212-975-3247 to let them know how much we appreciate this important factual coverage of Alex's journey to get the same health care as all other children. Alex's bowel disease was ignored and he was illegally restrained without doctor's orders!!!!!!!!!!! Share and retweet. Let Sharyl Attkisson know how much we needed this important story and how grateful we are that she covered the FACTS. Let CBS know we need MORE!!!!!!!
The Facebook post above is from a group of three women, Jill Rubolino, Amanda Lochbaum, and Jeanna Reed, who have formed a support group for parents called "Autism Is Medical". Back in 2009, the trio had planned to start a company flogging "autism recovery", but four years on, it is just a series of meetings. Jeanna Reed visited with Dorothy Spourdalakis while Alex was hospitalized, and encouraged her to distrust Alex's care team and refuse the care Alex's medical team was planning.
Text: Alex Spourdalakis. May he never be forgotten. May his story serve to remind us... we need each other. We can't do this alone. These children and their families need help/support. I never want to hear about another tragedy like this one as long as I live.
Please call CBS and tell them we appreciate autism related stories at 212-975-3247. We have to keep autism in the headlines. Keep telling your stories. We are making a difference!
The Facebook post above is by The Thinking Moms' Revolution, a group of autism-hating, anti-vaccine mothers who believe autism is vaccine injury. Lisa Joyce Goes is a founding member, and was one of the people telling Dorothy Spourdalikis that her son could be "cured" of autism if only he recieved the correct treatment.
ACTION ALERT: Sharyl Atkinson has asked that we all call CBS and tell them that we appreciate autism related...
Retweeted by Autism is Medical
More CBS News View this content on CBS News's website Behind the tragedy: Mother murders autistic son A new documentary produced by the Autism Media Channel shares a wrenching glimpse of a desperate mother who murdered her 14-year-old autistic son, Alex Spourdalakis. Sharyl Attkisson reports.
In an unprecedented insight into the apparently senseless and violent death of Alex Spourdalakis, a 14 year-old boy with autism, CBS in collaboration with Austin-based Autism Media Channel presents a game-changer – intimate documentary footage of the unfolding crime.
Autism Media Channel: Alex was one of millions of children at risk. Without a complete overhaul of our approach to autism treatments, therapies, and services, tragedies like this are inevitable.
CBS This Morning (PRWEB) September 01, 2013
Where: CBS THIS MORNING
When: Friday August 30, 2013, 8.00 am EST
In a country where 1 in 25 children born today will develop autism, this compelling story is certain to create universal debate. Alex’s tragedy is a story of our time, pitting the old against the new, capturing the iniquity of autism when perceived as a psychiatric oddity rather than a medical disease - an epidemic in an unprepared world. Using exclusive footage that followed Alex’s journey leading up to his death, CBS and Autism Media Channel present a story, unique in documentary history – one whose outcome should have been prevented; one that will change perception.
Polly Tommey, autism advocate, Autism Media Channel director, and founder of The Autism Trust, says the answers are staring us in the face. "Alex was one of millions of children at risk," she said. "Without a complete overhaul of our approach to autism treatments, therapies, and services, tragedies like this are inevitable."
For interviews with Autism Media Channel and professional enquiries please contact Ryan Parmenter at Modern Panda Pubic Relations on 512 797 2219 or email ryan(at)modernpandapr(dot)com.
MISSED IT! Watch it now at autismmediachannel.com
See also: The Autism File magazine free at autismmediachannel.com
Elsewhere, responses to Sharyl Attkisson's reporting at CBS on Alex Spourdalakis's murder
Age of Autism, Greater Good, Thinking Moms' Revolution, Autism Media Channel, etc. Coverage
Note: links to content I do not wish to promote are via donotlink.com. Read more at http://www.donotlink.com/dnl-why
It is a subset of the list that is discussed starting here, Those Lists of Papers Claiming That Vaccines Cause Autism: They Don't Show What They Claim (Part 1).
Source:Lisa Goes's Facebook page; as always, click to embiggen
Ginger Taylor is an anti-vaccine activist and vice-president of a tiny splinter political party. She has compiled a list of papers (the count is currently 72) that she claims "show that vaccines can cause autism".
Taylor's list of papers has been getting a lot of play, so a group of pro-science bloggers and writers reviewed the list in detail.
No, the 72 papers do not show that vaccines can cause autism. Papers #60-72 are discussed below the fold and you can download a copy of the full list yourself here: Download G_Taylor_list_debunked_V2.0_8_7
The complete series