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Sunday, August 23, 2009

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jennyalice

Wow.. thanks for the link. Jake may or may not have migraines. He responds to the medications, so we think yes. but since he can't always communicate his pin, it's all just a guess.
Jake's outbursts sound so similar to her son's.

Stranger

One of my children has migraines of a very rare type. I really can't blame the schools for not diagnosing labgrrl's son correctly. In my experience, even general practitioners and ER doctors can't diagnose them correctly. In contrast, the pediatric neurologists we've been fortunate enough to visit know what they're seeing, and can diagnose rare pediatric migraines.

Then, there's the general fear many people have of anything neurological. Many teachers didn't want to deal with a child who had a rare neurological condition, preferring to send my child to the nurse whenever anything the slightest bit unusual might happen. Then there were the teachers who don't believe in migraines, and thought my child was malingering.

The teachers and nurses who have given the best care suffer from migraines themselves, because they believe that a child can suffer from them, and isn't "making it up," or suffering a tension headache. They also know how variable the condition can be. Many doctors, nurses, and teachers, though, don't know much about migraines. Neurology really is a specialty, and pediatric neurology is a specialty in itself. If your child is suffering blinding headaches with nausea on a regular basis, it's worthwhile to find a pediatric neurologist. Learning how to avoid migraine triggers, and finding medication which can abort episodes, can make all the difference.

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