The Autistic Self Advocacy Network, in conjunction with the Petrie-Flom Center for Health Law Policy, Biotechnology and Bioethics, the Harvard Law Project on Disability and the UNESCO Bioethics Chair American Unit, sponsored a December 10, 2011 Symposium on Ethical, Legal and Social Implications of Autism Research.
Topics covered included prenatal testing, community participation in research methodologies, appropriate and inappropriate intervention goals and much more.
This symposium served a unique role in shedding light on ethics and values issues within the autism research community. By bringing together self-advocate and researcher participants, the symposium served as a starting point for meaningful dialogue between those conducting research on autism and the community of Autistic adults and youth. Confirmed participants include Administration on Developmental Disabilities Commissioner Sharon Lewis, ASAN President and IACC Public Member Ari Ne’eman, National Institute on Child Health and Human Developmental Director Alan Guttmacher, Harvard Law Professor Michael Stein, Paula Durbin-Westby, Emily Titon, Liz Pellicano, David Rose and many more.
This event was open to the general public without charge and was made possible by a grant from the Administration on Developmental Disabilities.
Continue to live tweets after the page break
There was significant additional discussion after lunch which I did not tweet or transcribe. Ari Ne'eman announced that a video recording and a transcription of the event will be available later. When it is, I will link to it here. Landon Bryce of ThAutCast has also posted on the symposium
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