Historic Congressional Autism Hearings November 29, 2012

Note this a reconstructed post from Google cache. Sad that we lost the comments

Important note: you may fax responses to the Committee, that will be included in the report, until December 6, 2012.  Use this form: http://www.teamcoelacanth.com/contactform.htm

image source: Autistic Self Advocacy Network

  Why were these hearings historic? For the first time, autistics were at the table, official panel members: Ari Ne'eman, president of the Autistic Self-Advocacy Network (ASAN), and Michael John Carley, Executive Director of the Global and Regional Asberger Syndrome Partnership (GRASP) and Asperger Syndrome Training & Employment Partnership (ASTEP)

(December 1 2012 I will be updating these lists silently)

 Coverage from autistics and allies:

1. Ken Reibel, Autism News Beat, Live blogging the hearings -1  11/29/12
2. Ken Reibel, Autism News Beat,  Live blogging the hearing -2   11/29/12
3.  Michael John Carley Report from the first-ever congressional autism hearing, 11/30/12
4. ASAN Update on the congressional autism hearing 11/29/30
5. Paula C. Durbin-Westby  Burden, burden, burden: Oversight committee, you've made your point (includes links and quotes from other autistics) 11/30/12
6. Inner Aspie  Speaking About #Autism- Rising Numbers and Funding
7. Thinking Person's Guide to Autism Congressional autism hearing recap 11/30/12
8. Sullivan, LB/RB Have a response to the congressional autism hearing? Let it be heard 11/30/12
9. Alyssa Z, Yes, That Too, I am 11/30/12
10. Ariane Zurcher, Emma's hope book Two autistics spoke. How many listened?  11/30/12
11. Jess, Diary of a Mom, the hearing 11/30/12
12. Mari-Jane Williams, Noah's Arc Consulting, Adults with autism tell Congress more funds needed for services 11/30/12
13. Emily Willingham,  Autism Congressional Hearings: Bingo, vaccines, and some baby steps forward 11/30/12
14. Raising Asperger's Kids How useless was the hearing?  11/30/12
15. Landon Bryce, ThAutCast, Autistic voices at and about congressional hearing 11/30/12
16. Karla Fisher, Karla's ASD page on Facebook, Congressional Hearing on Autism 2012 11/30/12
17. Sullivan, LB/RB Mr. Wright, is autism an epidemic or not? Why not give real examples of how to make a financial impact?,  11/30/12
18. Kassiane S., Radical Neurodivergence Speaking, What I faxed to the House committee hearing on autism, 11/30/2012
19. Jon Brock, Cracking the Enigma, The autism "epidemic": A plea for at least consistency in logic 11/30/12
20. Jo Ashline, Jo Ashline, Congressional Autism Hearing: My son is not a burden, 12/1/12
21. Amy Sequenzia, Autism Women's Network Autistic People Spoke, 12/1/12
22. Rose, Rose's Musings, My letter regarding the Congressional autism hearings, 12/1/12
23. Paula C. Durbin-Westby, The optimism epidemic: autistics on C-Span 12/1/12
24. Elise, Autisable.com The Congressional Hearing on Autism 12/1/12
25. Leah Kelley, 30 Days of Autism, H and Ari Ne'eman have a virtual conversation 12/1/12
26. Reuben Gaines, The Poxes, Who is your autism advocate? 12/1/12
27. Emma, Emma's Messiah Miracle of Music Mr. Ne'eman I want to help you 12/2/12
28. Steven Salzburg Congress holds an anti-vaccination hearing 12/3/12
29. Idoubtit, Doubtful News, Congressional autism hearing goes down the toilet, 12/3/12
30. Orac, Respectful Insolence, The mummer's farce that was the Congressional Autism Hearing last week 12/4/12
31. Aaron Carroll, The Incidental Economist, Still with the vaccines and autism, 12/4/12
32. Jaden Walker, The Thinking Person's Guide to Autism, Why wouldn't autism parents want to presume competence?  12/5/12
33. Ariane Zurcher, Huffington Post, The federal response to rising autism rates.  Two autistics spoke.  Did anyone listen?  12/5/12
34. Bethany Mandel, Commentary, Conspiracy Theorists Rule Autism Hearing, 12/5/12
35. Chavistory, Because I Remember 12/5/12
36. Matthew Saroff, 40 Years in the Desert, And Congress gets into anti-vax bullsh%$ 12/5/12
37. Russel Saunders MD, The League of Ordinary Gentlemen, Don't Elect the Scientifically Illiterate, 12/6/12

Coverage from anti-vaccination, autism-is-vaccine injury folk:

1. EBCALA Media coverage of congressional hearing 11/29/12
2. Bob Wright at Huffington Post It is time for a national autism strategy 11/29/12
3. Age of Autism, SafeMind's Mark Blaxill's Congressional Testimony 11/29/12
4. Jenny, Autism Wars, I Cry Because Others Are Stupid… Autism Hearings Today 11/29/12
5. The Rev (Lisa Joyce Goes), Thinking Mom's Revolution, Great.  Now What?   11/30/12
6. Dan Olmstead, Age of Autism, Landmark autism hearing: The troops have landed on Normandy Beach,  11/30/12
7. Lisa Ackerman,  TACAnow, Autism DC Hearing Summary 11/30/12
8. Tara McMillan, AMFAS Update,  Perspectives on Oversight Hearing 11/30/12
9. TMR, Thinking Moms' Revolution, Write Congress Now 11/30/12
10. Canary Party Congress Slams NIH, CDC reps for evading vaccine/autism evidence 11/30/12
11. EBCALA Finally, Congress takes action on autism 11/30/12
12. Mike Frandsen, Examiner Autism advocates, NIH, CDC testify to Congress about research, autism increase 11/30/12
13. The Cult of Recovery Federal response to rise in autism rates 12/1/12
14. Age of Autism, Mark Blaxill's Testimony for the Congressional hearing 12/1/12
15. Sugah, Thinking Moms' Revolution, Silent Sunday:Katie Wright is not impressed 12/2/12
16. Thinking Moms' Revolution, How the Zimmerman report effects us all 12/3/12
17. JB Handley, Age of Autism The Unbearable Wimpiness of Being Autism Speaks' Bob Wright 12/3/12
18. Patrick "Tim" Bolen, Huge Internal Fight in the Autism Community: It's no wonder autism is still with us 12/3/12
19. Poppy, Thinking Moms' Revolution, If Not Us, Who? 12/4/12
20. LuvBug, Thinking Moms' Revolution, Let's Get it On 12/5/12 
21. Kathy Jamison, Age of Autism, Congressional Autism Hearing, Take Note 12/5/12
22. Marcella, VaxTruth, VaxTruth Response to Congressional Autism Hearing 12/5/12
23. Brian Hooker, Age of Autism, Brian Hooker's Testimony to Congressional Autism Hearing 12/6/12

Backstory:

1. Sullivan, LB/RB, Oversight panel plans autism hearing 11/17/21
2. Emily Willingham, Forbes, Will science be in attendance at latest congressional autism hearings?  11/21/12
3. Thinking Person's Guide to Autism Speak out: Congressional autism hearing Nov. 29 11/21/12
4. ASAN Statement on upcoming congressional autism hearing, 11/21/12
5. Sullivan, LB/RB, Autism hearing?  Let yourself be heard 11/21/12
6. Paula C. Durbin-Westby, Oversight committee chooses not to include autistics in hearing, 11/21/12
7. Sullivan, LB/RB An open letter to the congressional oversight committee  11/23/12
8. Landon Bryce, ThAutCast, Autistic Witnesses called to congressional hearing, 11/24/12
9. Melissa Attias, Roll Call, Hearing gives Burton last shot at autism issue 11/27/12
10. ASAN  Thank you! Congress got the message: Nothing about us, without us  11/28/12
11. Sullivan, LB/RB, Witnesses for the congressional autism hearing announced 11/28/12
12. Pitney, Autism Policy Blog, Dan  Burton and the House Oversight Hearing 11/28/12
13. Autism News Beat, Keep your expectations low for the autism hearing 11/28/12

I liked this image from Karla Fisher so much I had to post it, not just link to it:

1. Ken Reibel, Autism News Beat, Live blogging the hearings -1  11/29/12
2. Ken Reibel, Autism News Beat,  Live blogging the hearing -2   11/29/12
3.  Michael John Carley Report from the first-ever congressional autism hearing, 11/30/12
4. ASAN Update on the congressional autism hearing 11/29/30
5. Paula C. Durbin-Westby  Burden, burden, burden: Oversight committee, you've made your point (includes links and quotes from other autistics) 11/30/12
6. Inner Aspie  Speaking About #Autism- Rising Numbers and Funding
7. Thinking Person's Guide to Autism Congressional autism hearing recap 11/30/12
8. Sullivan, LB/RB Have a response to the congressional autism hearing? Let it be heard 11/30/12
9. Alyssa Z, Yes, That Too, I am 11/30/12
10. Ariane Zurcher, Emma's hope book Two autistics spoke. How many listened?  11/30/12
11. Jess, Diary of a Mom, the hearing 11/30/12
12. Mari-Jane Williams, Noah's Arc Consulting, Adults with autism tell Congress more funds needed for services 11/30/12
13. Emily Willingham,  Autism Congressional Hearings: Bingo, vaccines, and some baby steps forward 11/30/12
14. Raising Asperger's Kids How useless was the hearing?  11/30/12
15. Landon Bryce, ThAutCast, Autistic voices at and about congressional hearing 11/30/12
16. Karla Fisher, Karla's ASD page on Facebook, Congressional Hearing on Autism 2012 11/30/12
17. Sullivan, LB/RB Mr. Wright, is autism an epidemic or not? Why not give real examples of how to make a financial impact?,  11/30/12
18. Kassiane S., Radical Neurodivergence Speaking, What I faxed to the House committee hearing on autism, 11/30/2012
19. Jon Brock, Cracking the Enigma, The autism "epidemic": A plea for at least consistency in logic 11/30/12
20. Jo Ashline, Jo Ashline, Congressional Autism Hearing: My son is not a burden, 12/1/12
21. Amy Sequenzia, Autism Women's Network Autistic People Spoke, 12/1/12
22. Rose, Rose's Musings, My letter regarding the Congressional autism hearings, 12/1/12
23. Paula C. Durbin-Westby, The optimism epidemic: autistics on C-Span 12/1/12
24. Elise, Autisable.com The Congressional Hearing on Autism 12/1/12
25. Leah Kelley, 30 Days of Autism, H and Ari Ne'eman have a virtual conversation 12/1/12
26. Reuben Gaines, The Poxes, Who is your autism advocate? 12/1/12
27. Emma, Emma's Messiah Miracle of Music Mr. Ne'eman I want to help you 12/2/12
28. Steven Salzburg Congress holds an anti-vaccination hearing 12/3/12
29. Idoubtit, Doubtful News, Congressional autism hearing goes down the toilet, 12/3/12
30. Orac, Respectful Insolence, The mummer's farce that was the Congressional Autism Hearing last week 12/4/12
31. Aaron Carroll, The Incidental Economist, Still with the vaccines and autism, 12/4/12
32. Jaden Walker, The Thinking Person's Guide to Autism, Why wouldn't autism parents want to presume competence?  12/5/12
33. Ariane Zurcher, Huffington Post, The federal response to rising autism rates.  Two autistics spoke.  Did anyone listen?  12/5/12
34. Bethany Mandel, Commentary, Conspiracy Theorists Rule Autism Hearing, 12/5/12
35. Chavistory, Because I Remember 12/5/12
36. Matthew Saroff, 40 Years in the Desert, And Congress gets into anti-vax bullsh%$ 12/5/12
37. Russel Saunders MD, The League of Ordinary Gentlemen, Don't Elect the Scientifically Illiterate, 12/6/12

Coverage from anti-vaccination, autism-is-vaccine injury folk:

1. EBCALA Media coverage of congressional hearing 11/29/12
2. Bob Wright at Huffington Post It is time for a national autism strategy 11/29/12
3. Age of Autism, SafeMind's Mark Blaxill's Congressional Testimony 11/29/12
4. Jenny, Autism Wars, I Cry Because Others Are Stupid… Autism Hearings Today 11/29/12
5. The Rev (Lisa Joyce Goes), Thinking Mom's Revolution, Great.  Now What?   11/30/12
6. Dan Olmstead, Age of Autism, Landmark autism hearing: The troops have landed on Normandy Beach,  11/30/12
7. Lisa Ackerman,  TACAnow, Autism DC Hearing Summary 11/30/12
8. Tara McMillan, AMFAS Update,  Perspectives on Oversight Hearing 11/30/12
9. TMR, Thinking Moms' Revolution, Write Congress Now 11/30/12
10. Canary Party Congress Slams NIH, CDC reps for evading vaccine/autism evidence 11/30/12
11. EBCALA Finally, Congress takes action on autism 11/30/12
12. Mike Frandsen, Examiner Autism advocates, NIH, CDC testify to Congress about research, autism increase 11/30/12
13. The Cult of Recovery Federal response to rise in autism rates 12/1/12
14. Age of Autism, Mark Blaxill's Testimony for the Congressional hearing 12/1/12
15. Sugah, Thinking Moms' Revolution, Silent Sunday:Katie Wright is not impressed 12/2/12
16. Thinking Moms' Revolution, How the Zimmerman report effects us all 12/3/12
17. JB Handley, Age of Autism The Unbearable Wimpiness of Being Autism Speaks' Bob Wright 12/3/12
18. Patrick "Tim" Bolen, Huge Internal Fight in the Autism Community: It's no wonder autism is still with us 12/3/12
19. Poppy, Thinking Moms' Revolution, If Not Us, Who? 12/4/12
20. LuvBug, Thinking Moms' Revolution, Let's Get it On 12/5/12 
21. Kathy Jamison, Age of Autism, Congressional Autism Hearing, Take Note 12/5/12
22. Marcella, VaxTruth, VaxTruth Response to Congressional Autism Hearing 12/5/12
23. Brian Hooker, Age of Autism, Brian Hooker's Testimony to Congressional Autism Hearing 12/6/12

Backstory:

1. Sullivan, LB/RB, Oversight panel plans autism hearing 11/17/21
2. Emily Willingham, Forbes, Will science be in attendance at latest congressional autism hearings?  11/21/12
3. Thinking Person's Guide to Autism Speak out: Congressional autism hearing Nov. 29 11/21/12
4. ASAN Statement on upcoming congressional autism hearing, 11/21/12
5. Sullivan, LB/RB, Autism hearing?  Let yourself be heard 11/21/12
6. Paula C. Durbin-Westby, Oversight committee chooses not to include autistics in hearing, 11/21/12
7. Sullivan, LB/RB An open letter to the congressional oversight committee  11/23/12
8. Landon Bryce, ThAutCast, Autistic Witnesses called to congressional hearing, 11/24/12
9. Melissa Attias, Roll Call, Hearing gives Burton last shot at autism issue 11/27/12
10. ASAN  Thank you! Congress got the message: Nothing about us, without us  11/28/12
11. Sullivan, LB/RB, Witnesses for the congressional autism hearing announced 11/28/12
12. Pitney, Autism Policy Blog, Dan  Burton and the House Oversight Hearing 11/28/12
13. Autism News Beat, Keep your expectations low for the autism hearing 11/28/12

I liked this image from Karla Fisher so much I had to post it, not just link to it:

Comments

[Leah_kelley]

I have faxed in my letter. This is a civil rights issue - a human rights issue - and one that transcends borders.

Thank you for this, Liz, and for the work you are doing for the autism community! I am spectacularly honoured to have my post be listed with 'autistics and allies.'

[Sparrow Rose Jones]

Thank you for this post, Liz. I just discovered it and I am pleased that you have collected all this information in one place. I am going to post a comment to my blog entry of my letter to Congress and give a link to this page so my readers can come here to get more information and backstory.

[JoyMama]

One more for the allies, perhaps outside the usual suspects (thought it's not a new topic for his blog). :-)

Aaron Carroll, The Incidental Economist, Still with the Vaccines and Autism